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Our Parent Participation Co-ordinator supports the Wigan Parent Carer Forum. We aim to engage as many parent/carers of children and young people with disabilities or special educational needs in Wigan as possible to have their voices heard. We also want to hear about issues that affect them. Our aim is to effectively influence and develop changes within Education, Health and Care. This project aims to ensure parents/carers and their children and young people with disabilities or special educational needs are able to lead full and enriched lives by being able to actively participate, influence and contribute to the decisions that affect their lives.

Wigan Parent Carer Forum Facebook PageVisit Wigan PCF Website

ages 0 to 25

what is participation

Parent/carers need good information to enable them to access the services they need for their disabled children. It should let them know about the opportunity to get involved in strategic decision making and shaping the services which are delivered.

The views of parents are sought but they are not involved in the decision making process. This could take place at the beginning of a process where a service provider asks parents for their ideas for a new service, improvements etc. It could also occur when plans are already in place and some decisions have already been made. Parents are offered some limited options which they can comment on.

Parents play a full part in the decision making processes for services. It is usually a continuous process in which professionals create an environment which enables parents to stay involved.

co production
Parents and providers are equals. Co-production happens when all team members design, develop, carry out and review recommendations, plans, actions and materials as a collective.

childrens disability data hub explained

The Children Act 1989 requires that every local authority maintains a register of children and young people with disabilities living in its area, in order to help plan for future services and ensure families receive up-to-date appropriate information. In Wigan this was formerly known as the CDR (Children's Disability Register).

what are the benefits

  • You will receive up-to-date information. (providing you submit an email)
  • We will be able to consult with you on the development of disability services.
  • We will have better information that can be used to plan the right services for the right people.

what information will it hold 
It will hold data on your child such as: name, date of birth, address, ethnicity, gender, child's disability / additional need and the services they receive.

Plus some basic details about you such as: name and address (if different to your child) and if applicable an e-mail address. Inclusion on the database is voluntary and all personal information is kept confidential. Names can be deregistered at any time.

who will have access to my information

Wigan Council and NHS Ashton, Leigh and Wigan will have access to your information, but this will be on a need to know basis only.

If you do not start to receive emails from me within a fortnight of registering please send an email to stating your child's name and D.O.B. to ensure I have the correct address.

whats happening
the local picture
Parent Participation has been evolving in the Wigan area for the last few years and Wigan Council has very much supported its development by funding a Parent Participation Officer to co-ordinate the work. The co-ordinator is employed by Embrace Wigan and Leigh: a local charity providing support to local families who have family members with disabilities.

The work of the Parent Participation Co-ordinator has led to the development of a more effective "Children's Disability Data Hub" which currently has over 1000 families registered on it. 

Parent Participation Co-Ordinator

Parent/carers are given the opportunity to get involved in Participation work via the Data Hub. This has led to parents forming the "Participation Development Group". The group work alongside the Local Authority, health, social care and the voluntary sector on a range of different projects, forums and task groups.

other groups

  • Family Forum (feeding into the LDPB)
  • Learning Disability Partnership BoardCarers Forum (feeding into the Carers Strategy Group)
  • Carers Strategy GroupCarers Training Group (overseeing the annual LA grant for carers training)
  • Moving On Group (facilitates bi-annual events showcasing local facilities)

send reforms group

  • Local Offer and Quality Assurance Group
  • Media and Communications (ensuring jargon free parent friendly info)
  • Preparing for Adulthood
    Personalisation and Personal Budgets
  • Implementation Strategic Board (IMPS) which all of the above feed into

Parents Involved in Training Professionals: Parents who sit on the above groups will also help deliver the extensive range of training that will be needed across the board to teachers, health visitors, early years providers, social care etc. Wigan have already started to provide this training and have been using parents to help with the delivery as they recognise parents input is valuable, and can effectively demonstrate the difference that a person centred approach can make to families.

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Can I join Wigan Parent Carer Forum?

If you are a parent of a child with a disability or special educational need and would like to make a difference to people in our community we would love to hear from you.

Telephone Lisa on: 01942 233323

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